"The patient journey: Information Technologies Focused in the cancer patient"

Introduction


The cancer care continuum defines the evolution of cancer patients, describing the different stages from cancer prevention, early detection, diagnosis, treatment, monitoring, and palliative care. It is a useful framework to identify progress and priorities, where we can detect and define objectives, achievements, risks and gaps. In this context, Information Technologies (IT) for healthcare has the potential to improve cancer management and care. The aim of this workshop is to analyze the impact of IT in the cancer care continuum as well as to discuss the present challenges and achievements in the different stages of the patient journey.

Potential Topics


Technical standards for information regarding cancer care throughout the disease course.
Ensuring patient confidentiality and privacy.
Transversal topics: Ethics, GDPR, Patient rights, Access to sensitive clinico-genomics data.
In silico drug prescription and clinical trials design.
Analyzing potential side effects of cancer therapies.
Improving continuity of care across disease stages.
Electronic Health Records (EHRs).
Development of new programmes for digital training of clinical and medical staff.
Challenges: data interoperability, systems interoperability, usability, adaptation to physicians’ workflows.
Overcoming resistance to digital change in patients and clinical personnel.
Financial incentives for digital transformation.
Patient virtual communities and social media: value in connecting with each other and in mining the online environment for information to help them cope with their disease.

Target Audience


Researchers (cancer researchers, informatics researchers, health services researchers, bioinformaticians), healthcare professionals (physicians, nurses, laboratory services, radiologists, hospital administrators, hospital practice designers, etc), IT for health developers.

THE ONCONET-SUDOE PROJECT


ONCONET-SUDOE is a cooperation network in oncology, co-financed by the Interreg Sudoe Programme through the European Regional Development Fund. It seeks to connect researchers, care providers, biobanks and companies to set long-term relationships that foster innovation in oncology sector. ONCONET SUDOE members are: Université Toulouse III Paul Sabatier; Fundación Miguel Servet – Navarrabiomed; la Fundació BioRegió de Catalunya – BIOCAT; Fundación del Sector Público Estatal Centro Nacional de Investigaciones Oncológicas Carlos III – CNIO; Fundación Parque Tecnológico de Ciencias de la Salud de Granada – PTS; Universidade de Coimbra and Instituto Catalán de Oncología de Barcelona – ICO.
You can find further information about ONCONET-SUDOE project at www.onconet-sudoe.eu

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